When a loved one has Lewy Body Dementia: Caregiving after crisis
Nancy Chandler had recently moved back to Long Island, N.Y., and noticed a change in her mother. She was much more anxious, became easily overwhelmed, and kept repeating herself.
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Nancy Chandler had recently moved back to Long Island, N.Y., and noticed a change in her mother. She was much more anxious, became easily overwhelmed, and kept repeating herself.
A long-time volunteer with the Alzheimer's Association, Chandler is working to raise awareness on dementia research, funding and treatment outcomes.
Speaking with Dr. Margarita Reyes of Bristol Health in Connecticut about cultural health considerations, the stages of grief after a diagnosis; how to handle misconceptions or misinformation; or when an individual is resistant to getting evaluated for Alzheimer’s or other forms of dementia.
My mother, Paulette, and my dad, Edwidge, came to America from Haiti in the ’70s. My mother was very well educated. She actually used to be a teacher in Haiti. We used to run into people who were her students all the time.
Cusido had a complicated relationship with her father who was often angry and volatile–even before he was diagnosed with Alzheimer’s disease. Towards the end of his life, Cusido became her father’s primary caretaker in his N.J. home.
Originally from Brooklyn, Barbara Weiss, 70, lives on Long Island, N.Y., with Dennis, 73, her husband of nearly 50 years, who received a diagnosis of mild cognitive impairment in 2023 and early-stage Alzheimer’s disease in 2026.
Alex Miller, 40, temporarily relocated to Alabama, where he was a primary caregiver for his father who was aging in place with dementia, glaucoma and other health issues. Today, Miller talks with his father every week, but wishes he could do more.
Kelly Glover is a co-caregiver with other relatives for her father who is aging in place with Alzheimer’s disease in N.J. Glover is a Congressional Team ACT Member, part of the Alzheimer’s Impact Movement (AIM), the sister organization of the Alzheimer’s Association.